Rob If you need anything other then prayers you know of the email adress here in Minnesota.
Prayers are always helpfull and you have ours.
Hagrid
The wife has M.S. You also have my email address. Sometimes it's good to talk to someone you know who has been down the road you will be taking. Contact me. And you MUST sit your daughter down and exsplain a few things to her.
1. You never judge a M.S. patient by other M.S. patients. M.S. is one of those desieases that can and will affect 100 people in 100 diffrent ways. When Patty was first diagnosed we were sent to an M.S. support group. There were 20 people with M.S. and only 5 of them were walking and did so with canes. She was devistated and was sure she was condemed to a wheel chair. NOT SO. She is really doing good now and you can hardly tell she has anything wrong.
2. Rest. It is imperitive. 100 percent of the M.S. patients I have met have fatigue and tiredness at some leval. This can range from mild to extreame. Again everyone is diffrent. Patty works at the school from 7:30 am to 3:30 pm and sometimes can berely make it to the bed room to lay down. Your daughter needs to stop living her life like most people do when it comes to this. Most people work themselves till they feel tired and they know about how much they can do before they get there. M.S. patients need to start out with doing nothing and work their way up to what they can stand to do. Getting tired out without M.S. is usually remedied by a period of rest. For those with M.S. it extends the rest period greatly to achive the same goal. Remeber M.S. is an imune system desease. When an M.S. patient over dose it and gets really tied out it not only takes longer for them to recover but it also makes them vastly more suseptible to other things like colds and the flu.
3. A good, no a damn good, Neurolagist is your daughters best and only hope of living a fairly un effected life with M.S. It can be done and is done regularly. But if you are not 200% satisfied that your Neurolagist is the best in his field, then find the one that is.
Rob
I would never make lite of your thread by taking it off on a side road. So please forgive me for doing that. But I do not know yet what your daughters ailment is. Rest assured that you and her are in our thoughts and prayers and I really do hope for the best for her. However I felt that this was the thread to give some advice to Hagrid on because I know you wish him well also and your the type of guy to say that if it will help him then go ahead and post.
